we met with our specialist this week, actually 2 of them this week. we feel like we got some more answers and are moving forward. for those of you with questions, this is what we know...
* our baby has a problem with his large intestines, they are dilated larger than normal and continue to get larger,
* which means there is something blocking them.
* it is a blessing i was bleeding early so they could catch this. they have been watching it closely.
* this happens in about 1/5000 births.
* we do know he will need surgery after he is born.
* we do not know how extensive it will be until he is here.
* we do not know how long the surgery takes or how long he will stay in the hospital.
* they will diagnose him in the first 24-48 hours after his birth.
* i will not be able to nurse him.
* he will be feed through an IV.
we feel blessed to have family on both sides offer to help!
we are going to meet with the pediatric surgeon, OB, and tour the hospital where we will be delivering in the next few weeks. we will need to make a few visits there before you come and it is a few hours away. we have been told they will probably induce me anywhere from 38-39 weeks.
we were able to see you in 4D this week, your brothers thought that was cool. they always love to hear your heartbeat. at your appointment your tummy measured small, barely 27 weeks. your femur bone measured almost 30 weeks. a big difference but then they looked at daddy and your brothers and said we can see it runs in the family, long and skinny. i do not include myself in that because i am not feeling so skinny. she said you weigh 2 pounds 11 ounces!
* our baby has a problem with his large intestines, they are dilated larger than normal and continue to get larger,
* which means there is something blocking them.
* it is a blessing i was bleeding early so they could catch this. they have been watching it closely.
* this happens in about 1/5000 births.
* we do know he will need surgery after he is born.
* we do not know how extensive it will be until he is here.
* we do not know how long the surgery takes or how long he will stay in the hospital.
* they will diagnose him in the first 24-48 hours after his birth.
* i will not be able to nurse him.
* he will be feed through an IV.
we feel blessed to have family on both sides offer to help!
we are going to meet with the pediatric surgeon, OB, and tour the hospital where we will be delivering in the next few weeks. we will need to make a few visits there before you come and it is a few hours away. we have been told they will probably induce me anywhere from 38-39 weeks.
we were able to see you in 4D this week, your brothers thought that was cool. they always love to hear your heartbeat. at your appointment your tummy measured small, barely 27 weeks. your femur bone measured almost 30 weeks. a big difference but then they looked at daddy and your brothers and said we can see it runs in the family, long and skinny. i do not include myself in that because i am not feeling so skinny. she said you weigh 2 pounds 11 ounces!
I think that this blog is a Wonderful idea!! I am jealous that I didn't do it for my baby. Thank you for the update. We will keep you guys in our thoughts and prayers. You look GREAT.
ReplyDeletei've been checking your blog for weeks! you are in my prayers. you look beautiful. i'm sorry for your worries. what a sweet little spirit you have in your body, just awaiting his arrival! love you. c
ReplyDeleteI have gotten bits and pieces from the family, but it was good to hear an update from you. I have been thinking about you guys A LOT!! You look so great and cute, despite how you may feel! You will continue to be in our thoughts & prayers. Love you guys!!
ReplyDeleteWhat do they think it is? As someone who has had a lot of large intestine issues, I hope all goes well. Is the surgery exploratory? or are they removing the colon?
ReplyDeleteDeb! I have been so behind in reading blogs.... I love this baby blog you are keeping! I am so sorry to hear about baby but so glad that the drs seem to be on top of it and will take good care of him, and you. I will keep your family in my prayers! xoxo
ReplyDeletebtw~ you look great!